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skip to content purehealth clinic alternative & complementary healthcare menu welcome about testimonials important! functional medicine tests mind body medicine why mind-body medicine? supplies blog trulyglutenfree gluten illnesses the gluten healing process bmj article shop support health a-z a-b ace and trauma-triggered illness acid reflux (gerd) indigestion, heartburn adrenal fatigue allergy and intolerance allergy definitions anaphylaxis food allergy conditions treating allergy & intolerance alopecia/hair loss anaemia animal health asthma autism, adhd & behavioural issues blood pressure brain, memory and cognition c-e cancer candida central sensitivity syndrome children cholesterol chronic fatigue constipation detoxification diabetes type 2 diet exercise f-k fertility gallbladder pain genetic testing gum (periodontal) disease heart disease herbal medicine holiday health histamine imbalance ibs irritable bowel syndrome infections insomnia l-n leaky gut/hyper-permeability liver nafld low stomach acid (hypochlorydia) meds & supplements checker menopause men’s health mercury methylation/mthfr migraine muscle & joint pain o-p oestrogen dominance osteoporosis pain disorders pms pregnancy probiotics psoriasis pyroluria q-t sad sibo siga sinusitis skin stress, anxiety and depression tinnitus thyroid problems u-z vitamins & minerals magnesium vitamin d weight loss worms/helminths subscribe books search for: search trulyglutenfree welcome to the trulyglutenfree section. this is for people who suspect or have a gluten related disorder (not just coeliac disease!), a grain sensitivity – or who are not getting well! you will find a whole raft of articles, research, tips etc in the tgf blog category here . and the full gluten plan with how to test and treat effectively here. access a load of free and paid-for resources here . and you’ll find all the relevant lab tests here. the main gluten, cyrex and autoimmune tests are here . you can read the original introductory article (2009!) i wrote about it here: no grain, no pain – micki rose. also read the summary review of the gluten summit conference 2014 which has a ton of juicy bits and tips from the experts in the field. you can get that free here: gluten summit review . there’s stuff in there you can show your doctors too. and, so you’re far from alone with it, come and chat on the special closed trulyglutenfree facebook group here – there are some really supportive and knowledgeable peeps on there who will help you! i don’t know what i’d do with out them, to be honest! introduction our knowledge of gluten illness – now officially termed ‘gluten-related disorders’ (grds) – has come an awfully long way in the past few years. we now know that gluten illness is a spectrum of disorders rather than all about coeliac disease. you can have 4 main types: gluten classical ige allergy – rare but does occur gluten malabsorption – lack of enzymes to break it down, although i don’t think that occurs without a larger gluten problem personally; it’s a clue. coeliac disease – the autoimmune attack on the villi in the gut and.. non-coeliac gluten sensitivity (ncgs) – every bit as serious as coeliac disease, an inflammatory and sometimes autoimmune attack anywhere in the body. people with an ‘intolerance’ ie. a delayed reaction to gluten would also come under this category. this is far more prevalent than coeliac disease. this makes testing for gluten related disorders somewhat complex. in essence, mainstream medicine is very slow at changing and 99% of health professionals still think about and look only for coeliac disease markers. to get an official diagnosis on your health records, it is likely that you need to go through the mainstream coeliac testing process so it’s best to start with that. however, the vast majority of gluten-sensitives do not have coeliac disease, and even 50% of coeliac disease sufferers do not have the traditionally-accepted markers. that’s why the rate of diagnosis for coeliac disease is so woefully low, and much, much worse for the newly-recognised non-coeliac gluten sensitivity, since most people have never even heard of it, although since i launched the subject in the uk in 2009, it has gained a lot more traction, thank goodness. given a negative coeliac result, most people are told they don’t have a problem with gluten and off they go, completely unaware that the problem is with the testing, not them. they merrily continue to eat a food which, inside, is causing inflammatory and autoimmune attacks. coeliacs are not healing on the traditional gluten free diet it is, in fact, well known that the vast majority of coeliacs do not heal their villi – and therefore continue to suffer the consequences of long-term malabsorption. most ‘experts’ say it is because they must be still eating gluten. whilst that may be so in some cases, there are simply too many with continued illness and symptoms for that always to be so. my view is that they are probably reacting to other types of grain gluten (or indeed other fractions of the food) or to known gluten-cross-reactive foods. and most aren’t even aware of that issue, let alone their doctors. ncgs can be more severe. the other issue is that there are far more people suffering with the other forms of gluten related disorder, especially ncgs (non-coeliac gluten sensitivity) and, in fact, ncgs can be every bit as severe as coeliac disease and worse in many cases. ncgss are known to be more sensitive to gluten, to react more strongly to it and to react to much smaller amounts. they also tend to be more reactive to other grains, not just the gliadin involved in coeliac disease, but especially the ubiquitous corn which literally turns up in everything. ncgss have a different gene profile to coeliacs quite often and are not even being looked for. this is a big mistake because we know now that ncgs pathology involves two main pathways: inflammation in the body and autoimmunity, both of which stem initially from the damage done by a gluten-zonulin process to the body barriers, causing leaky gut, blood-brain barrier, lungs, skin etc. the most common ncgs issues are neurological, especially chronic headaches, migraine, mood disorders, brain fog and movement disorders eg. ataxia, restless legs etc. not a coeliac picture that, is it?! how prevalent are gluten related disorders? in the book dangerous grains,, authors braly and hoggan suggest that ncgs is around 30 times more prevalent than coeliac disease [cd] and up to 15% of people, or 1 in 7, are gluten sensitive [gs]. those are huge numbers! dr peter green, director of the celiac disease center at columbia university says that 60-70% of the people he sees who think they have coeliac disease don’t but they are actually gluten-sensitive. ‘mr ncgs’, as he is known, prof umberto volta, is currently conducting clinical trials on ncgs in italy. they are following 2,000 patients very closely. he estimates that the prevalence of ncgs is much higher than published statistics say: “if we take into account that about 30% of ibs cases are ncgss, then it is around 6% of the population, not 0.6%”. he says they see double the number of ncgss than coeliacs. the average age for coeliac disease to trigger is 34, for ncgs: 45. it is sudden-onset usually as the body loses oral tolerance to gluten and is more likely to happen after 40 as the body starts to age and lose control a bit more. more women get cd and ncgs but it is more than four times than in men in ncgs: female to male in ncgs is 4 or 5:1 and in coeliacs that is 2-2.5:1. coeliac disease is one grd. tell-tale symptoms and conditions… there is a now a recognition that cd is just one manifestation of the autoimmune diseases caused by gluten. writing in the lancet in march 2010, dr marios hadjivassiliou and colleagues wrote: “this disorder [ncgs] is characterised by abnormal immunological responsiveness to ingested gluten in genetically susceptible individuals.

URL analysis for trulyglutenfree.co.uk

https://purehealthclinic.co.uk/health-a-z/pyroluria/
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https://purehealthclinic.co.uk/the-gluten-healing-process/
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Domain name:
trulyglutenfree.co.uk

Registrant:
Michaela Rose

Registrant type:
UK Individual

Registrant's address:
85 Cliffe Way
Warwick
CV34 5JG
United Kingdom

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 04-Dec-2015

Registrar:
1 & 1 Internet SE [Tag = 1AND1]
URL: https://www.1and1.co.uk

Relevant dates:
Registered on: 01-Nov-2010
Expiry date: 01-Nov-2018
Last updated: 10-Aug-2017

Registration status:
Registered until expiry date.

Name servers:
ns1017.ui-dns.org
ns1060.ui-dns.com
ns1105.ui-dns.de
ns1126.ui-dns.biz

WHOIS lookup made at 00:17:20 18-Jan-2018

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER co.uk.whois-servers.net

  ARGS trulyglutenfree.co.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Michaela Rose

TYPE
UK Individual

ADDRESS
85 Cliffe Way
Warwick
CV34 5JG
United Kingdom
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 04-Dec-2015

DOMAIN

  SPONSOR 1 & 1 Internet SE [Tag = 1AND1]

  CREATED 2010-11-01

  CHANGED 2017-08-10

STATUS
Registered until expiry date.

NSERVER

  NS1017.UI-DNS.ORG 217.160.83.17

  NS1060.UI-DNS.COM 217.160.82.60

  NS1105.UI-DNS.DE 217.160.80.105

  NS1126.UI-DNS.BIZ 217.160.81.126

  NAME trulyglutenfree.co.uk

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Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
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